The HFEA's newsletter on fertility treatment data |
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Welcome to the second ‘Data research update’ newsletter from the HFEA! |
This quarterly newsletter provides information on: |
- Updates to the UK national register of fertility treatments
- Recent HFEA reports and external presentations
- Upcoming HFEA events and webinars
- Research publications using HFEA register data
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New HFEA report - State of the fertility sector 2023/4 |
New data from the recently published State of the fertility sector 2023/24 report shows that serious incidents in the UK fertility sector remain rare, with over 99% of the almost 100,000 cycles being carried out without incident.
Our report provides a snapshot of the HFEA’s regulatory work for the year, covering the number of inspections, reported incidents, and non-compliances. Further data on licenced clinics and ovarian hyper-stimulation syndrome (OHSS) can be found in the underlying dataset. |
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Upcoming HFEA publications |
Family formations in fertility treatment 2022
The next HFEA data report is the second 'Family formations in fertility treatment 2022' report to be published in Winter 2024/25 following the first report in 2020. Our upcoming report will provide the latest UK statistics on NHS funding, IVF, donor insemination, and egg freezing for mixed sex, female same-sex and single patients. |
National Patient Survey 2024 Thank you to those who shared the HFEA’s third National Patient Survey which ran from 2 September - 9 October. Our survey explored the patient experience of fertility treatment across the UK, from initial GP access to the most recent treatment, with patient feedback collected playing a pivotal role in shaping the future of this sector. The latest report on patient experience is expected to be published in Spring 2025 and follows the report published in 2022. |
Fertility treatment 2023: preliminary trends and figures
Our annual update on the number and type of patients treated, the different treatments they had, and the pregnancy and birth rates of fertility treatments is expected to be published in Summer 2025, following our report published in 2024. |
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Upcoming HFEA webinar - Accessing the UK national fertility register for research 5 February 2025 |
Register here for our upcoming webinar On 5 February 2025, the HFEA will host our first webinar for researchers interested in accessing data from the UK national fertility register.
The HFEA has collected data on all IVF and donor insemination treatments undertaken in UK licensed clinics since 1 August 1991, with this believed to be the longest running dataset of its kind. Our register holds information on fertility treatments, patients, partners, donors and children born as a result of treatment. More information about the register is available on the data research webpage.
The webinar will provide researchers with information on UK national register data, details on the application process, and an opportunity to ask questions about accessing data for research. |
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Horizon scanning in fertility research - Scientific and Clinical Advances Advisory Committee (SCAAC) |
The Scientific and Clinical Advances Advisory Committee (SCAAC), comprised of Authority members and external advisors, held its last meeting of the year on 7 October 2024.
The committee was joined by the team at Newcastle Fertility Centre who presented progress on their Mitochondrial Donation Programme. This was followed by discussions on human stem cell-based embryo models, in vitro derived gametes, and the 14-day rule for embryo research.
Details of previous meetings including agendas, papers, and minutes can be found on the SCAAC homepage. |
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Recent HFEA presentations on national fertility register data |
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Research publications using HFEA register data |
A list of publications since 2023 can be found below, with earlier papers found on our website. We rely on researchers to let us know when they have published research using HFEA data. If you have a publication to contribute to the bibliography, please contact us at register.research@hfea.gov.uk.
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Publications using de-personalised and personally identifiable data obtained through the Register Research Panel (RRP) |
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Williams, C.L., Bunch, K.J., Stiller, C., Murphy, M.F.G., Botting, B.J., Davies, M.C., Luke, B., Lupo, P.J., & Sutcliffe, A.G. (2024) Langerhans cell histiocytosis in children born after assisted reproductive technology. Reproductive BioMedicine Online, 49(6).
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Sutcliffe, A.G., Purkayastha, M., Brison, D.R., Nelson, S.M., Roberts, S.A., & Lawlor, D.A. (2023) General health in a cohort of children conceived after assisted reproductive technology in the United Kingdom: a population-based record-linkage study. American journal of obstetrics and gynecology, 228(1).
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Hua, X., Rivero-Arias, O., Quigley, M. A., Kurinczuk, J. J., & Carson, C. (2023) Long-term healthcare utilization and costs of babies born after assisted reproductive technologies (ART): a record linkage study with 10-years’ follow-up in England. Human Reproduction, 38(12).
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Ratna, M. B., Bhattacharya, S., & McLernon, D. J. (2023) External validation of models for predicting cumulative live birth over multiple complete cycles of IVF treatment. Human Reproduction, 38(10).
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Raja, E.A., Bhattacharya, S., Maheshwari, A., & McLernon, D. J. (2023) A comparison of perinatal outcomes following fresh blastocyst or cleavage stage embryo transfer in singletons and twins and between singleton siblings. Human Reproduction Open, 2023(2).
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Kondowe, F. J. M., Clayton, P., Gittins, M., D’Souza, S. W., Brison, D. R., & Roberts, S. A. (2023) Growth of twins conceived using assisted reproductive treatments up to 5 years old: a national growth cohort. Human Reproduction, 38(4).
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Datta, A.K., Campbell, S., Diaz-Fernandez, R., & Nargund, G. (2024) Livebirth rates are influenced by an interaction between male and female partners’ age: analysis of 59 951 fresh IVF/ICSI cycles with and without male infertility. Human Reproduction, 39(11).
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Paffoni, A., Vitagliano, A., Corti, L., Somigliana, E., & Viganò, P. (2024) Intracytoplasmic sperm injection versus conventional in vitro insemination in couples with non-male infertility factor in the ‘real-world’ setting: analysis of the HFEA registry. Journal of Translational Medicine, 22(687).
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Allen, C., McLernon, D., Bhattacharya, S., & Maheshwari, A. (2023) Early pregnancy outcomes of IVF cycles using donor versus partner sperm: analysis of 1 376 454 cycles recorded by the Human Fertilisation and Embryology Authority (1991–2016). Human Reproduction, 38(6).
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Editorial statement
Data research update is an official electronic newsletter of the Human Fertilisation and Embryology Authority, is produced by the HFEA and provides a roundup of news and information on the Register data and Register Research Panel activity. No part of this publication may be reproduced without prior permission. You can view our privacy policy on our website.
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